A Hearing Loss & Late Deafened Blog

Super Accommodations for the Super Bowl

In Closed Captioning, hearing loops on February 8, 2016 at 12:49 pm

by Chelle George-Wyatt

For years I have mostly stayed home to watch the Super Bowl because I want to watch it the way I want to watch it.  Mainly I want to control the captions.  I don’t like the captions on during the game because they are often displayed right in the middle of screen where all the action is going on.  Or they put the captions over stats, times, scores, etc and sometimes I want to see all that too. However I like to turn the captions on during the commercials for they are half the fun!  So watching football with me means I push a lot of buttons.

This year I have the hearing loop to top it off.  Now I really don’t need or want captions during the game and I can hear the commercials that aren’t captioned.  This year it looks like all the commercials were captioned anyway but I was prepared.

We got an invite this year and my husband politely turned it down after talking to me (see my reasons above).  His friend came back and said he has 3 TVs so I could have the captions on one of them.  This is where I took over and thanked him for the offer then explained my remote control control use.  “I’d need to be the remote control queen.”  I also told him I have the hearing loop here at home and that’s an added benefit.  I expected to see “I understand” but instead he came back with “You can be remote control queen and bring your loop too.”  Wow!  I get to watch the game the way I want and be social too???  Okay then, we accepted the invite.

He sent my husband a picture of the back of his TV so we could figure out the connection ahead of time.  Funny enough, we used a spare connection from the Bluetooth TV streamer I have and don’t use (I can’t keep my necklace charged to use it).    We got there a little early and this is what I see as I walk into the living room.

IMG_3690

My husband pulls out the loop and it connects to the TV without a problem.

IMG_3691

The hearing loop driver.

Now I’m all set with lots of options.  I can watch the game. I can hear the game.  I can socialize.  I can move in and out of captions especially fast because his remote control had a special CC button.  I was in Super Bowl heaven.

IMG_3694

The hearing loop driver.

Good food, good people and a pretty good game even though I wasn’t cheering for the team who won.  It was a unique experience and I was honored to be included, I was touched and so thankful for my husband’s friend, our friend, to include us.

I think that was the first time I’ve told someone the full reason why I don’t go to Super Bowl parties, why haven’t I given people my reasons before?  I could be more proactive and not automatically assume it won’t happen.  There are some really good people out there and I think most people fall into that category.  I think I’m pretty good about asking for accommodations but then something like this pops up and I see I could do better.

 

The SWC Convention Committee Part 4

In SWC convention on February 1, 2016 at 11:43 am

Debbie

Debbie Mahoney has been with SWC for ever a decade on the Vistas list. She says, “SWC is a great place to connect with people anytime of the day, and to discuss both hearing loss and get support in our daily lives. When you have a hearing loss it is not always easy to make connections to others who share the same challenges, SWC makes it easy to ‘meet’ others who understand. She started volunteering for the convention committee in 2010 for the Denver mini-con. She helps out behind the scenes picking up various responsibilities.

What do conventions mean to you?  Conventions are a great way to connect to people in person, and have a great time getting to know the people you ‘talk to’ through email or online. The workshops offer so much information, I always learn something new. The activities are so much fun, it’s great to be able to visit the area and do something I might not ordinarily do on my own.

What’s your goal for the SWC Boise 2016 convention?  To help make this convention a great experience for those who attend. I hope that people who have not attended in the past take a chance and register. It’s a life changing experience that you don’t want to miss!

Linda

Linda Settle has been with SWC for 4 years now and she says, “What’s not to like about SWC!? I was first impressed with the consistently high level of kindness, concern and mutual respect from everyone. Yet it took no time at all to realize that SWC is a fun-loving group with a great sense of humor. I have learned a lot from my friends here about all aspects of hearing loss. SWC keeps me sane when it comes to coping with hearing loss.

This is Linda’s first year on the convention committee. This will also be the first SWC con she’s attended. The convention committee asked her to be a local host since she lives in Boise. “Of course I was excited to find out that the SayWhatClub is coming to my wonderful city.”

Since this is your first convention, what are you thinking?  I’m looking forward to it. It will be fun to meet my friends in person and learn about new aspects of coping with hearing loss. Once I experience the Boise con, I’m sure I’ll want to go to all the future ones.

What’s your goal for the Boise Convention?  My goal is to have several of my friends with hearing loss attend at least part of the con. Hopefully because the presence of SWC in Boise, we can raise the level of ‘hearing loss awareness’ in the area. Another important goal is for the con to enrich the lives of all SWC members, whether they come to Boise or experience it through our discussions/encouragement online.

 

Arthur Veen (no picture available) joined the SWC fall of 1998 after a SWCer on another mailing list mentioned it to him and then introduced him to Bob (president of SWC then). Bob invited him to the join. “At the time you had to be introduced and asked unlike nowadays,” Arthur says.

What do you like best about SWC?  No hearing problems and being able to have nice, long, interesting discussions with interesting people once in a while without worrying about not hearing things, though miscommunication can still happen as even e-mail is not the perfect means of communication. Plus everyday discussions are fun as well.

In 2000/2001 Arthur was involved with the convention planning, mostly for the convention program book and some behind the scenes assistance. In 2015 he joined the convention steering committee once again. This year he is helping with PR but he also helps a lot in behind the scenes technical assistance.

What does the SWC convention mean to you?  These days it is first and foremost about meeting old and new friends. Second it’s about learning new things on new and familiar topics; some subjects just keep coming back after a while but it is always nice to find out how things have developed over time and what the current developments are. There is always some new interesting technology every year.

What’s your goal for the 2016 Boise convention?  We already have an interesting group of speakers and presenters for the Boise convention so the expectations are high. I hope this convention will be the best one we have had so far, to live up and to exceed Jazzy’s expectations. It is the combination of size (not too big), workshops and social interaction that makes the SWC conventions such a pleasure to attend and above all, makes us feel we’re more than just hearing loss and my hope is that we’ll achieve this again.

Game Night

In advocating, Coping Skills, Relationships, Uncategorized on January 26, 2016 at 12:08 am

game night

By: Sara Lundquist

About a year ago I wrote about advocating for myself and how I need to work on that aspect of my life, well lots of areas.  I have found that this is not an easy task, and I have found this takes time. and also make peace with myself and acceptance.  In college I was part of a group or a cause.  I will go to meetings and pay dues and make posters and be all for helping a cause.  I have found the hard part becomes when the person you are trying to help or advocate is yourself.  It seems like there is a neon sign over your head and I don’t want it lit up.  I sure hope this isn’t a common thing with many people, but it is with me at times.

A few weeks ago we were invited to a game night at a young couples house.  I was excited to be invited, and my daughter and I ended up going.  Including us there was 4 families there.  There are a couple people at the game night that know of my hearing loss and many did not, including the hosts.  I debated do I say something, do I tell them in the kitchen before we play games.  I knew not letting people know that I need to see people when they talk and so on would hinder the night.  I made a mountain out of a mole hill in my mind and I stayed quiet.

whats the lyrics

Because I stayed quiet I ruined the first part of the night for myself.  The first game was about song lyrics.  Are you serious, it couldn’t get worse.  I have never been able to understand that many song lyrics since a child.  That is one of the first things my husband noticed when we first dated.  I didn’t understand what songs were about, I didn’t hear enough of the lyrics just mainly listened to the music.  The game was you split in teams a word was said and you go back and forth saying lyrics that contain that word till a team can’t think of one.  My first mistake was I took the card and looked at the word we were now thinking of.  I don’t understand what the big deal was but one person yelled you can’t look at the card, we all heard it.  I dropped that card so fast and I could tell my face was beat red.  I wanted to crawl in the couch.  The next problem began when I started thinking I really stink at this game I need to contribute.  I finally thought of some lyrics so I yelled them out.  Whoops our team just thought of one so now the other teams turn. I gave them a point.  One team member got upset that I gave the other team a point.  Well needless to say I was feeling mighty low.  I remained silent the rest of the game and our team lost.  I wanted to leave but my daughter was having a great time.  I ventured to the kitchen to look at the snacks and a friend came up to me gave me a hug and said they felt really bad for me and that game.  They agreed it was a very hard game to follow especially if you couldn’t hear all what was said.  Next game was a card game.  It was great, 4 people sitting around a table.  I did mention something to the fact that I don’t have the best hearing but that was about it at this point.  I kicked myself of not saying something at the beginning.  The night ended great.  Now I need to change.

I need to advocate for myself.  I need to get myself in the mindset that I am worth it.  No one cares that I wear hearing aids and they may have to repeat something.  So why is it so hard to say something.  Why do I feel that neon light is blinking above my head.  So once again this will be a resolution for 2016 and my whole life.  I advocate for causes, my children, my husband, I need to include me.  When I am with a friend that happens to be hard of hearing and our families get together I feel so at ease.  I don’t need to pretend, I can be myself completely.  She gets it, her husband gets it, my family does it just feels great.  Peas in a pod, or birds of a feather they all mean this feeling.  Find people that understand and with the friends you have try to explain let them know, let them into your life.

I can’t wait to meet and be with more people that get it.  I hope to soak in the confidence, experience and advice they can give me.  This year I want to take time for me, stand up for me, and become a better me.

respect

 

 

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