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Entries from November 2008

A New Eye Doctor, A Sight for Sore Ears

November 23, 2008 · 5 Comments

I went to the eye doctor last week in order to make one last effort at seeing better with contact lenses.  I have worn contact lenses to correct my vision since I was a young teenager, many moons ago, but as my mid forties passed before my eyes (pun intended) I began needing a little help seeing the written word–print on the pages could only be seen clearly at arms length and in good lighting situations.

A short-lived solution proved to be mono-vision contact lenses, wearing one contact to correct nearsightedness and one contact to correct farsightedness, and while I had initial success with mono-vision, I progressively began losing more vision than could be corrected by that means.  Most troubling was the loss of my mid-vision, a scary prospect for someone who relies on lip/speech reading in order to hear.  I found myself getting up in people’s faces, close enough that their lips were not blurry, which resulted in a backing away from me as I advanced closer.  I am sure there were those who thought it possible that I had a lip fetish, since it seemed I was only interested in their lips.  LOL  They would not have been too far off the mark, as my depleted vision made lips and speech the main focus of my sight.  I concentrated so hard at achieving the optimum distance and getting what the person was saying, I often lost the context and content of what they were saying.  This was not working anymore!!

In moving to a different state, two years ago, I was forced to find a new eye doctor.  I hoped I would find a doctor who could correct my multi-vision needs with contacts, but the bifocal lenses this new doctor prescribed still left me with unclear gaps in my vision.  The bifocal eyeglasses were a better solution, so I gave up on contact lenses after weeks of trial, as my eye doctor made weekly adjustments to hone in on a good prescription, without much luck.  It was a very similar experience to the unsuccessful hearing aid trials I have endured over my adult life.

I continued to miss wearing contact lenses (you can’t snorkel in eyeglasses) and the better vision they provide over eyeglasses, and decided to switch doctors, again, hoping a new perspective might yield better results.  I related my contact wearing history to this second, new doctor, explaining the problems I was having with my vision as it related to contact lenses, and stating what I hoped he could do for me.  Of course, as with most new meetings, the first thing I let the doctor know was that I needed to see him speak in order to hear him.

Through the course of the exam, my new doctor “got” how difficult it is for me to hear without my glasses.  I could almost physically see the realization of the “see to hear” concept sinking into his brain as he examined my eyes in the low light setting of his exam room.  Suddenly, he abruptly stopped his exam, turned the light on, handed me my glasses, and ask me to give him my hearing history.  As I spoke, he further “got” the fact that what I see affects what I hear and, in turn, what I understand.  Again, I could almost see the wheels turning in his brain, trying to apply my description of how I “see to hear” to all he knows about vision.  The feeling I had, at having someone genuinely interested in my hearing in order to best adjust my sight in relation to it, was one of euphoria.  I rarely have had an ENT or Audiologist show that much interest in my hearing, let alone an eye doctor.

It was decided we would try a specialized prescription.  One contact lens in my dominate eye for nearsightedness and a bifocal lens, with emphasis on the field of vision I need to read lips, for my less dominate eye.  Like hearing aids, this multi-vision solution most likely will take some trial and adjustment, but I am hoping it will be successful and allow me to wear contact lenses again.  If not, then I have had the positive experience of finding a doctor who is as interested in how I hear, as he is in how I see, because he “gets” that those two senses are more connected for someone who cannot hear.  Those rare people who make that connection on a simple level are priceless.  Those even rarer medical professionals who make that connection on a deeper level, as it applies to their science, are just as priceless, maybe even more so?  You can be assured I will make my appreciation known to this talented and smart man who took the time to understand my needs with regard to seeing speech in order to prescribe the best vision correction possible for me to hear better.  How cool is that?

Michele

Categories: Deaf · Hearing Loss · Hearing aids
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Coping with hearing loss

November 7, 2008 · 12 Comments

Most recently on one of our lists, a lengthy discussion became somewhat of a battle as to the use of the word “COPING.”  Many people felt that coping was an important part of accepting our hearing loss.  Others believed that the word coping is a cop out that focuses on acceptance of being less of a person.

Personally, I believe you have to have a good support system and have developed good coping skills to get to acceptance of your new life as a person with hearing loss or deafness.   Naturally, the hearing population is pretty clueless when it comes to understanding life with a hearing loss and how alienating and depressing one can feel when we stop coping or do not know how to cope and just feel overwhelmed.  I just love when I ask a hearing person to repeat what they just said (I really should be asking them to rephrase) and they ask me if my hearing aid is working today?

Coping with our hearing loss is synonymous to learning to cope with hearing people and their reactions to our loss.  Personally, I don’t recall ever dealing with by my hearing loss at the age of 19. I acted as though it wasn’t my problem but the hearing persons problem.  However, I did choose to work in the field of hearing loss and deafness and it wasn’t until I was in my early 40’s that an audiologist friend pulled me aside and very “nicely” told me, I was not hearing as well as I might think I am.  That it was time for me to consider getting a hearing aid.  At first I looked at her as if she were coming from another planet and I felt angry. In my mind,  I was hearing just fine. I was not open at that time, to wearing a hearing aid as my previous experiences had been horrendous and pricey.

She took me into the audio booth and gave me the hearing test I stopped doing years ago.  She explained my hearing loss to me but she did something else that no one had previously done, she explained exactly what I wasn’t hearing and showed me the results on an audiogram with graphics.  It showed me what I was missing out on.  Something just clicked, not like a light bulb going on but more like an aha moment. Suddenly, I felt less angry (something I had been denying for a long time) and suddenly I searched until I found an audiologist I could work with to assist me with trying out different hearing aids.

To this day, I use the audiogram with graphics to explain a childs’ hearing loss to the parent, to the student, to the teacher or to whomever the parent wants me to explain it to.  This helps all the parties involved to COPE and to strategize what is needed in moving toward acceptance by both the individual/student with hearing loss as well as the hearing people involved.

I can proudly say, I have been wearing my hearing aid religiously (and I’m not a religious person), for 12 years.  I still don’t hear everything but my hearing aid is part of my coping with hearing loss. I have no speech discrimination in one ear so I can only aid the ear that has a moderate to profound loss.  I find that my most challenging times continue to be with the hearing world but I am no longer angry.  The need for educating them about what a hearing loss or deafness means to us and that it can happen to anyone not just the elderly.

So coping to me, is not a negative word, its a reality. If we don’t cope we allow ourselves to sink into the belly of isolation and lonliness and that is not a place I want to be nor do I want u to be.  Helping each other is important to coping.  If you know someone who is feeling alienated due to their hearing loss, help them find support systems whether it be on line or a group at a community clinic or join us at the SayWhatClub.  I would love to hear how others coped with their hearing loss or deafness.

Categories: Accommodations for Deaf · Cochlear Implants · Deaf · Hearing Loss · Hearing aids · Tinnitus · employment