Archive for July, 2009


I have just about had it with people who totally do not understand hearing loss.  Sitting around the picnic table on my deck with family, when suddenly my niece turns to me, taps me on the shoulder and says out loud,  “are your hearing aids on?” 

I looked at her with complete contempt and disgust.  Afterall, she knows I am hearing impaired, knows I wear a hearing aid…….ah! but she’s hearing and she’s clueless.  It doesn’t matter how many times I tell hearing people that wearing a hearing aid does not give us 20/20 hearing, they still don’t get it, can’t comprehend it, and in my opinion, so afraid to imagine what it’s like to be without it.

I’m getting to the point in my life where I am tired of educating the hearing on hearing loss and deafness.  I’m tired of being nice about it and most of all, I’m tired of hearing peoples lack of wanting to understand hearing loss.  I most recently discovered the only way to give hearing people a small taste of what it’s like to have even a mild to moderate hearing loss is to give them a taste of it.

I do workshops for school staff on early detection and understanding  hearing loss.  One day, while preparing my powerpoints, I was trying to figure out how to bring the audience into the life of hearing loss.  And it hit me, I need to allow my audience to get a sense of what hearing loss sounds like to us.  So, I searched the web and found several programs that I could set up to have the audience listen to a man, woman and childs voice and what it sounds like to hear those voices at different degrees of hearing loss.  I also purchased several hundred packaged earplugs online to have each person experience a 35 db. hearing loss (thats if the individual did not have an unknown additional loss) toward the end of the presentation. 

What I discovered by giving everyone the earplugs and moving along with my presentation was that everyone was so baffled by what they could or could not hear and the difficulty they were having with the speech discrimination.   Some people refused to put the earplugs in both ears, some pulled them out after a few minutes but everyone was totally thrown into a new light about hearing loss.  My experiment has been so successful that I now use the earplugs and what hearing loss sounds like for all my presentations to make my point.   I also always carry earplugs on me, just in case I need to do a quick lesson.

Getting back to my niece.  After several minutes of people joking around about my hearing loss, I pulled out packages of earplugs and handed them out.  I told everyone to put them on and continue with their conversations.  At first, no one took me seriously, but the look on my face told them, they best listen. They listened and listened they did.  There were lots of “what did u say?”  ”Did u say blue or hue?” “Look at my lips and try to read them.”

After ten minutes, I got a big apology from my niece as well as my nephew as well as lots of questions. I guess deep down inside I do care and can’t help but feel the need to educate the hearing.  I guess I also learned a lesson here and that is, I need to be patient, as patient as I expect the hearing person to be with me.

Target was sued recently because its website was inaccessible to the blind. A court ruled that a retailer’s website is a virtual “location,” and must be as accessible as an actual store.

In June of 2008, Representatives Edward Markey (D-MA), Chairman of the House Subcommittee on Telecommunications and the Internet, and Heather Wilson (R-NM) introduced http://www.govtrack.us/congress/billtext.xpd?bill=h110-6320 The 21st Century Communications and Video Accessibility Act of 2008″ (H.R. 6320). The bill would require major producers of Internet videos and on phones that deliver video streams to add captions.

The goal, Markey said, is “to ensure that people with disabilities are not left behind as technology changes.”

According to the Pew Internet and American Life Project, about half of U.S. Internet users now watch video online. Many want to watch YouTube videos which are mostly produced by individuals. They may never be required to caption their short videos because they are not commercial enterprises. However, the good news is that YouTube is encouraging everyone to do so. Go here to see how it can be done, and tell anyone you know who is submitting material to YouTube:

http://www.youtube.com/t/captions_about

Few prime-time video streams include captions. For example, NBC captions many of its Internet streams, but CBS does not. These are the corporations the law is addressing.

The main problem is that there is no single common file format or way for all media players to handle captions.
A coalition of over two hundred organizations representing hard of hearing, deaf and blind people are working to advocate for the Markey legislation. Here is a link to that coalition’s website. http://www.coataccess.org. There, be sure to “sign” the petition about captioning internet media.

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