The SayWhatClub is an Internet-based support group, geared toward people in varying stages of hearing loss. We have been organized and incorporated since the mid 1990′s and serve a worldwide membership. The SayWhatClub has been a proven lifeline to those struggling with hearing loss in order to function in a hearing world to learn coping skills, job skills and acceptance. Here we find a whole family of people ‘just like us’ who share the feelings of isolations, the heartaches and, strangely, the joys of living with hearing loss.
Our members run the gamut from ‘mild’ to ‘profound’ and every level in between. We also welcome spouses, partners and friends who love us and wish to have a better understanding of our world.
We hope you will post your comments and opinions on our weblog. Please feel free to visit our website and consider joining us at www.saywhatclub.com. We’d be honored to welcome you to our far-flung but close-knit family.
Linda M. Binns
President-Board of Directors
SayWhatClub
President-Board of Directors
SayWhatClub
Hello,
My hearing loss began in late 2003 at the age of 45. My mother and my maternal grandfather both lost their hearing at about the same age. I am on my second set of hearing aids, which, thankfully, enables me to hear, but not so well. Unfortunately, my hearing is getting steadily worse, to the point where I avoid initiating conversations with people that I don’t know. I can’t hear my youngest daughter unless I put my face right up to hers and listen with all my concentration.
My emotions run from anger to feeling sorry for myself to why bother.
John, please keep checking back and as i said previously, check out our main website at http://www.saytheword.com its a great support group
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A website for anyone to learn sign language…completely online
I posted my experience on a web site.
Maybe it will help others, I am now fully cured of my hearing loss; it was caused by a food allergy
http://sites.google.com/site/joeyhorowitz/
Depression is what brought me to this site. I began to lose my hearing in 1986 at the age of 39. The doctor, at that time, asked if I worked around loud noises because of the type of loss I had. When I misunderstood words and answered questions that had nothing to do with what was asked, I began to crawl into a hole. My outgoing personality became introverted. In addition, I have fluid in both ears which causes my hearing to fluctuate. I have considered surgery but because of the infections, it would involve removing all the bones connected to hearing which scares me to death. I have come to a point of not wanting to leave my house. I am hoping to find some support and comfort with this group.
Carol –
Another great organization to check out is the Hearing Loss Association of America (HLAA). They have both online resources and local support groups where you can meet other people going through the same thing. It has been a lifesaver for me and many other hoh people I have met through them. Visit the website http://www.hearingloss.org and you can find chapters located near you. Each chapter has its own slant; the one I attend is mostly made up of working adults. It’s a support group and we also have educational presentations and social activities. So if one doesn’t appeal to you, try another and I’m sure you’ll find a fit. Good luck and take care.
Depression is what brought me to this site. I began to lose my hearing in 1986 at the age of 39. The doctor, at that time, asked if I worked around loud noises because of the type of loss I had. When I misunderstood words and answered questions that had nothing to do with what was asked, I began to crawl into a hole. My outgoing personality became introverted. In addition, I have fluid in both ears which causes my hearing to fluctuate. I have considered surgery but because of the infections, it would involve removing all the bones connected to hearing which scares me to death. I have come to a point of not wanting to leave my house. I am hoping to find some support and comfort with this group.
+1