Category: Cochlear Implants


I belong to a writing group here in Salt Lake City.  The writing center had it’s 10 year celebration last night and I was asked if I wanted to represent out little group.  Sure!  My topic is almost always hearing loss as I’m looking to educate others.  I asked the Connect list what would be the best thing for me to write on and they said the reality of hearing aids.

So last night was the reading and I received positive response from the audience.  I shared it on the Connect list and now I’ll share it here on the SWC blog.  Here it is…

Hearing Aids 101

 a la Chelle George

Hearing aids aren’t called hearing miracles for a reason. Hearing aids help but they can’t reproduce true hearing. Technology is making advances but there is no cure for hearing loss. Those of us who wear hearing aids learn their limits but some hearing people around us seem to think once we pop our hearing aids in, we will understand everything. I’m here to tell you, even with our aids in we are still hard of hearing.

Sensorineural hearing loss, also called nerve deafness, is the most common type of hearing loss and it is permanent. With this kind of loss, some sounds come across at normal volume and others not all. Usually it’s low tones heard best with the higher frequencies missing. High pitches includes birds, bugs, timers, phones, kids and many women’s voices. In the alphabet many consonants are higher frequencies and vowels come across in low tones. Out of 26 letters in the alphabet, I hear five of them best; even with my hearing aids in.

Imagine going through your day hearing mostly vowels and only some consonants clearly. Many conversations are a constant puzzle to piece together. Take the sentence, “I’ve got to get my keys,” and try understanding it this way: I ot et I ee’s. For those with hearing loss, their mind races to fill in the blanks much like Wheel of Fortune with letters blanked out. Life becomes the Wheel of Fortune, only can I buy a consonant, please? The vowels aren’t as important. My hearing aids help me get a few more sounds but I still miss whole words. A busy day of ‘hearing’ can lead to exhaustion with all that concentration and mental activity.

Hearing people seem to think, “If only she would turn up the volume, she could hear.” Here it is in simple terms; volume distorts. Some sounds I hear well and some I do not. Take the word “shout” and try shouting it out. The “OW” hurts my ears coming across loud and clear but the “sh” and “t” are lost in “OW.” Shouting won’t work and neither will hearing aids with a super high volume because technology hasn’t caught up to missing frequencies.

Mechanical hearing pick ups mechanical noises better than sounds I want to hear. I can’t hear my phone ring, my cat meow, birds sing and I have trouble understanding speech but I do hear the garbage truck grind to a halt in front of my house, the banging of the garbage bin as it’s tipped over and set back down. In cars, I hear road noise better than the person sitting next to me. In restaurants I hear fans, refrigerators and soda machines, not to mention the clashing of plates and clattering of silverware far better than the person sitting across from me trying to have a conversation. This also applies to large gatherings. All I hear is the roar of the crowd which drowns out the person in front of me trying to talk.

Technology has come a long way and digital hearing aids have helped in that these noises don’t hurt my ears as much as they used to but I still can’t hear whispers, understand the television without captions nor lyrics in songs and I can’t understand what someone says from another room, even with my hearing aids in. Listening to people takes mega amounts of concentration. I use some lip reading, watch body language and facial expressions for clues and sometimes I still get stuck on a word or a whole sentence, even with the help of my hearing aids.

I don’t leave the house without my hearing aids because without them I am more lost and every little bit helps. The old analog hearing aids were much harder to wear all the time because they turned up all the noise, including those I already heard well. The newer digital ones suppress some sounds and then try to take sounds I can’t hear and turn them into sounds I can but even that program has it’s limits.

Eye glasses slip on and replace vision but hearing aids can’t do that. They help but they do not give me my hearing back. All the adjustments in the world will not replace true hearing. Please know I am tormented at my own failure to understand my native tongue, simple English. I come down hard enough on myself without others getting impatient with me. Once sounds are gone, they are gone and there is no magical cure.

*Note: Cochlear implants run along the same lines. They may hear more sounds than a hearing aid but The CI does not replicate true hearing either.  Cochlear implant people are hard of hearing, even with their CI on.

A hard of hearing life would be isolating without today’s technology.  I can only imagine it as
lonely.  I remember what life was like before computers.  I lived in a small, desert town of about 15,000 people and there were no hard of hearing resources available locally.  It was an hour and a half in any direction from a big city.  I traveled out of town to get hearing aids and I went out of town again to get them adjusted.  In my late twenties, I was the only person I knew with hearing aids except for the snowbirds who came to town in the winter.

by Chelle George

Coping with hearing loss meant faking it, that was my only strategy back then.
I tried being hearing because I didn’t know what else to do.  There were so many conversations lost during those years and missed connections too.   It was a poor strategy.

Along came the internet and America Online.  For months, I had to call long distance to dial up so I was limited being online but oh how I loved it.  It opened up a new world for me.  This was the first place I could socialize without struggling to hear.  With the internet, I no longer felt like a social idiot.  All the words were right in front of me to see.  It was beautiful.

It took some months before our small town had local internet service and right away I signed
up.  I had unlimited internet time at long last.  I was overjoyed and spent every spare moment online, chatting, emailing and surfing the web.

After a year of playing around online, where I never had to admit I was hard of hearing, I
looked into hearing loss.  The first sites I remember finding was SHHH (Self Help for the Hard of Hearing) and ALDA.  There wasn’t much on their web sites except some basic information and a list of chapters.  The nearest one was an hour and a half away which wasn’t feasible for me.

Keeping up the search, I found the Say What Club.  I joined and learned so much from those good people.  Faking it was bad they said so I worked on being honest about my hearing loss. There was a whole world of assistive listening devices (ALD’s) out there. The phone company
provided voice carry over phones and I signed up for one. I learned about resources such as vocational rehabilitation and the disability center at my local community college.  I was not alone
when I had the Say What Club with daily emails of strategies, support or even the chance to rant or cry about our predicaments.  I had friends from all over the country who understand what it was like to be hard of hearing.

Without the Say What Club being available to me online, I would have been years behind in
technology and awareness. Most likely, I wouldn’t have the courage to be upfront about my hearing loss.

The next big miracle was texting.  It started out a teenager activity and my kids were among those who texted.  One night I had my daughter sit down and show me how to do it. She was patient and I learned.

The problem was, I seemed to be one of the few adults who texted.  How I wished my friends and  family members texted back then.  It was so much easier and quicker to communicate, in my opinion.

A few years down the road, other adults began texting.  My mom was among the first and it elevated our communication to a daily thing.  A couple times a day we would text one another back and forth.  If a whole day went by without one of us texting, we text, “Everything ok?”   It was great having my mom at my finger tips and our relationship grew.

Now texting is common.  Many friends and most of my family texts.  Better yet, I had bosses
and co-workers text me.  Airlines, my tax person and my own phone company have started using texting.  Most people say yes to texting when I ask them.

My phone doesn’t ring much. Instead it buzzes with text alerts.  I discourage phone calls with most people.  A type of anxiety builds up me in every time I think about phone calls.  Even my voice mail tells people to text me instead.  (That has gotten rid of unwanted sales calls!) I loathe phone calls.  On the flip side, my phone is near me most of the day and I don’t go anywhere without it.  The buttons are worn and friendly from making words on the little screen.  I can’t go without texting anymore than I could go without email now.

I upped and moved to Salt Lake City almost three years ago, away from those small desert
towns. Surely the big city would hold a SHHH or ALDA meeting some where.  A quick internet search showed me SHHH had changed to HLAA (Hearing Loss Association of America).  There was HLAA chapter meeting once a month at the local deaf and hard of hearing center.
Not only was I lucky enough to find a meeting with others like me, I landed at the Sanderson Center for the Deaf and Hard of Hearing.

HLAA meetings were advertised on their local web site with CART (Communication
Access Real Time).  I heard about CART many years before with the Say What Club but never experienced it.  The thought of it was exciting.  It was pure joy to walk into my first meeting
for HLA at the Sanderson Center and see the whole meeting captioned. I was elated.

Every meeting I go to at the Center has CART available if I or others request it.  It was another miracle as my hearing continues to plunge.  I can go to three hours of meetings there (or a presentation) with CART and walk away energized.  Two hours in a social situation without CART or any other accommodation and I leave exhausted.  I go the Center every chance I get.  Every time I walk in the doors I feel the burden of the hearing world lift off my shoulders and I relax.

I’m glad I live when I do.  Technology has been keeping up with me.  I can’t imagine how separated from the world I would be without it.  I try imagining what life would have been like for the hard of hearing and deaf 100 years ago with no technological help… the only words that come to my mind are  isolated and lonely.   Technology has been keeping up with me.  I can’t imagine how separated from the world I would be without it.  I try imagining what life would have been like for the hard of hearing and deaf 100 years ago with no technological help… the only words that come to my mind are  isolated and lonely.   Technology continues to improve and
expand.  I’m eager to see what comes.
next.

Follow

Get every new post delivered to your Inbox.

Join 32 other followers