Category: Meniere’s


Wonderful as defined by Webster is a feeling aroused by something that is unexpected, marvelous and excellent; an event or thing which causes astonishment, admiration and wonder. A once popular band leader was well known for his utterance of the words “Wonderful, Wonderful.” My previous wonderful, wonderful vanished following the onset of my hearing loss which has progressed from mild to severe. A new wonderful for which I had to search relentlessly, did not come easily. In contrast to my home environment which is quiet to a fault, I found my new wonderful, wonderful at the seaside.

I also love the mountains where the soaring height gives me the sensation of a closeness to the face of God through time and space, which is more awesome than at the usual level of earthiness. But the mountains are too silent for me. Their quietness falls silent on my non-hearing ears. I do not hear their voices.

But the sea — well, that is a facet of nature that is unexplainable in normal terms. Through my hearing loss, I gained a special fondness for the sea. Nothing is more awesome than a thunder storm over the waters. Each strike of lightening is like the handwriting of God. Each thunder clap is like His powerful voice, as they remind me of His majesty and my smallness on this speck of dust called Earth. It is at the seaside that I hear best. I like the sea because of its noise. The sea is noise that I can hear. I cannot hear all noise, but I can hear the sea. I hear its thunderous roar. I hear its quietness. I hear its silence. I hear its gentle lapping at the shore. The sea speaks wonderfully to me in silence and in sound.

The sea opens my closed ears to the wonders of the years of quietness that have caused me to forget. At sea-side, I can allow myself to become engulfed in the magnitude of God’s greatness, yes, even His love at a more human, understandable level. At that nexus and plexus where the incoming Atlantic waves have dwindled and eternally kiss the sandy beach, I walk along this meeting place of solitude with the waters playing tag with my toes. I listen to its silence. I listen to its sounds. This is my wonderful, wonderful. My wonderful silence. My wonderful sounds.

by Virginia M.

SWC is an acronym for the SayWhatClub.  I joined SWC back in 2001 when I was at my lowest point and feeling alienated from everything around me because of my hearing loss.  What I discovered was many people who appeared to have gone through what I did but were in a better place in their lives.  I had no idea how many people had hearing loss because it certainly felt as though I was the only one for a very long time.
SWC is an on-line community where people understand who we are and what we’re going through.  The great part was not only meeting people from across the U.S. but meeting people from New Zealand, England, India, Africa and several other countries.  To know that there are so many people out there going through or having gone through the same experience is truly an enlightment.

SWC has several lists (with a maximum of 99 people on a list) that share feelings, frustrations and humor without having to explain and repeat ourselves.

If you were recently diagnosed with hearing loss and feel confused about hearing aids, we have many experienced hearing aid users who’ve been there and done that. We can tell you how to be a smart consumer and not just settle for just any price given to you. How to pick a good audiologist, how to get the best deal on hearing aids, what assistive technology can do for you in the workplace and how to survive the holidays and so much more that affects us daily.

If you’re considering having a Cochlear Implant or just want to learn more about implants, we have a special list for C.I. users.

If you’re just beginning to investigate whether the C.I is for you or want to learn more about implants, than we have a great group of people to tell you their personal stories. People who have been through the process and started out exactly where u are right now. People who have questions and answers about the differences in manufacturers of the Implants. Most of all, if you decide to go through with having the implant, everyone on the list is ready and willing to go through it with you and high five you when you hear your first words.

We’re happy to announce that we will soon be starting a special list group for people with Meneire’s and vertigo problems.  So keep coming back to our weblog or website to check for the announcement of the start of this wonderful and much needed group.

If you’re interested in learning more about SWC please visit us at: www.saywhatclub.com and search through our website. Feel free to email and ask questions concerning joining a great group of people who can relate to where you are, where you’re going and what’s in store for you.   Each list group has its own personality so that our hospitality committee can make the right fit for your specific needs.

Hearing loss doesn’t have to mean the end of your social life, your work life or your communicating with people. SWC is here to give you the tools, the support and resources to get through it and not allow yourself to be alienated from an active life.

Our lists are made up of everyday people. Come see for yourself and allow us to give you what we’ve been given…. friendships, support, opportunities and much more.

 

 

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