SayWhatClub Weblog

Entries categorized as ‘Vertigo’

TIRED OF SAYING WHAT?

December 19, 2008 · 1 Comment

SWC is an acronym for the SayWhatClub.  I joined SWC back in 2001 when I was at my lowest point and feeling alienated from everything around me because of my hearing loss.  What I discovered was many people who appeared to have gone through what I did but were in a better place in their lives.  I had no idea how many people had hearing loss because it certainly felt as though I was the only one for a very long time.
SWC is an on-line community where people understand who we are and what we’re going through.  The great part was not only meeting people from across the U.S. but meeting people from New Zealand, England, India, Africa and several other countries.  To know that there are so many people out there going through or having gone through the same experience is truly an enlightment.

SWC has several lists (with a maximum of 99 people on a list) that share feelings, frustrations and humor without having to explain and repeat ourselves.

If you were recently diagnosed with hearing loss and feel confused about hearing aids, we have many experienced hearing aid users who’ve been there and done that. We can tell you how to be a smart consumer and not just settle for just any price given to you. How to pick a good audiologist, how to get the best deal on hearing aids, what assistive technology can do for you in the workplace and how to survive the holidays and so much more that affects us daily.

If you’re considering having a Cochlear Implant or just want to learn more about implants, we have a special list for C.I. users.

If you’re just beginning to investigate whether the C.I is for you or want to learn more about implants, than we have a great group of people to tell you their personal stories. People who have been through the process and started out exactly where u are right now. People who have questions and answers about the differences in manufacturers of the Implants. Most of all, if you decide to go through with having the implant, everyone on the list is ready and willing to go through it with you and high five you when you hear your first words.

We’re happy to announce that we will soon be starting a special list group for people with Meneire’s and vertigo problems.  So keep coming back to our weblog or website to check for the announcement of the start of this wonderful and much needed group.

If you’re interested in learning more about SWC please visit us at: www.saywhatclub.com and search through our website. Feel free to email and ask questions concerning joining a great group of people who can relate to where you are, where you’re going and what’s in store for you.   Each list group has its own personality so that our hospitality committee can make the right fit for your specific needs.

Hearing loss doesn’t have to mean the end of your social life, your work life or your communicating with people. SWC is here to give you the tools, the support and resources to get through it and not allow yourself to be alienated from an active life.

Our lists are made up of everyday people. Come see for yourself and allow us to give you what we’ve been given…. friendships, support, opportunities and much more.

 

 

Categories: Cochlear Implants · Deaf · Hearing Loss · Hearing aids · Tinnitus · Vertigo · meniere's

Please Face Me – And Make it a Double (part one)

July 30, 2008 · 4 Comments

Questions, questions.

“What do you think made you start drinking?”

Laundry List:
- Pending divorce and expected result: bankruptcy
- Looming debts rivaling the national budget
- Loss of driving ability from sporadic bouts of vertigo (fear factor)
- Tinnitus
- Hearing loss

“What – wait, you have hearing loss?”

I read your lips and guess much of the rest.

- Loneliness (LL continued)
- Endless battles for accommodation

“Any major issues in your childhood that might be involved?”

And so it goes. The above is an excerpt from one of many interviews I had in the behavioral health facility where I recently spent 4 days (inpatient) for alcohol detox.

Great facility, great program (I detoxed successfully, and will get outpatient aftercare).

Of interesting note; it turned out to be much easier communicating with my “peers” (other patients in the facility for a variety of reasons) than with most of the staff.

All the patients wear wrist bands of various color – it’s a bona-fide hospital – some wore more than one (I had 3 – red, yellow, green – I liked to call myself a traffic light).

My green band meant that I voluntarily requested a bed in the facility (meaning I could choose to leave any time I wished – not true for everyone). The red band meant that I have allergies to certain medications – to remind staff to look at my chart before administering anything to me.

The yellow band I had to request on my own from a day nurse, even though I’d mentioned this issue at my intake interview – it meant “fall risk” (vertigo).

Now I’m not one to jump off a horse (particularly one I picked out and saddled up myself) in mid-stream, so I wasn’t going to leave the place until I’d fully detoxed and my doctor agreed with my assessment.

When that finally did happen, and I got to speak to my case manager (CM) prior to going home, I had a few questions…

My first question was regarding the “missing” color band (not the yellow – but some color I never received because it doesn’t exist). It was, of course, the “Deaf/deaf/HOH” band. Or perhaps even a generic “different ability” band. Something that would at least flag the staff that they’d need to provide some extra accommodation for my situation.

I’d wear my “Please Face Me” pin, but pins are (understandably) contraband in a mental health facility.

My CM told me to be sure to write that on the evaluation form (which I’ve not seen a trace of yet).

My next “question” (really a statement) gave my CM a bit of that “deer in the headlights” look.

“In my aftercare program (group therapy sessions), I’m going to need CART.”

The CM needed the acronym deciphered, of course. Being the helpful guy I am, I did so, and also let her know that I could hook (whoever) up with some folks I know who can provide excellent remote CART – and all you need is an Internet enabled PC, a microphone, and Skype.

Those deer were becoming hood ornaments at an amazing rate.

“Well, there is a PC in the room where we do the sessions.”

Good, as long as it’s got Internet; and the folks I can hook you up with can tell you everything else you need to get/do.

[head nod affirmative]

And by the way, it’s required by law that you accommodate me.

The deer were frolicking in the roadway; the venison business booming.

I let it go at that, and moved on to more mundane questions about my ongoing meds, the schedule for aftercare, etc.  The road crews cleaned up the mess, and traffic flowed cheerfully along now.

Although I’m pretty sure most readers won’t identify with my original goal, nor my choice of “hotels”, I’ll bet many of you have similar stories to tell about your interactions with the medical community in general.

Let’s face it – there are probably more than a few AUDIOLOGISTS who don’t know what CART is (or at least won’t mention it if they do). I’m learning (with the help of my SWC friends) that if there’s a battle to fight, than fight I’d better. Particularly when it comes to my (OK, mental) health.

In part two of this post, I’ll let you know how the aftercare accommodation turned out.

Cheers and best wishes for your own battles.

Paul S

Categories: Accommodations for Deaf · Hospital Accoommodation · Vertigo · meniere's
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