A Hearing Loss & Late Deafened Blog

Archive for the ‘Deafness’ Category

La Technique of Lipreading

In Coping Skills, coping strategies, deaf, Deafness, Hearing Loss, late deafened, Lip Reading, Partially Deaf, Speech Reading on June 23, 2017 at 10:49 am

By Michele Linder and Chelle Wyatt

I recently watched American Masters on PBS, Jacques Pépin: The Art of Craft. La Technique: An Illustrated Guide to the Fundamental Techniques of Cooking was Mr. Pépin’s first book and contained no recipes. While other well-known chefs were introducing people to a world around food and the dishes themselves, Jacques Pépin recognized the value in deconstructing how it was done—the basics of cooking—so that people would feel empowered. It occurred to me that that’s what Chelle and I are trying to do with lipreading—deconstructing how it’s done in order to empower.

Screen Shot 2017-06-07 at 8.14.44 PM

Michele: Before delving into the fundamentals and technical aspects of lipreading (Chelle will do that in her next article in the series), it’s important to set the stage for success.

Chelle: There is a mystery surrounding lipreading and there shouldn’t be. Not too long ago that it dawned on me how much went into lipreading and it isn’t just seeing lip shapes; it’s a holistic process.

Take charge, exert control over how your hearing loss fits into your life.

Michele: Lipreading takes a lot of work and concentration. It also requires you to be comfortable with making others aware of your needs, and to be prepared to handle how the world reacts to you and how you react to unforeseen situations and mishaps. The more relaxed you remain, the better your ability; the more comfortable you make yourself and others with hearing loss.

I’m a frequent traveler. I’m also out and about doing many things solo, which means I often take charge in making others aware of my hearing loss. When I inform successfully, in situations that are seen as challenging for those who hear differently, I’m often complimented.

You’re really impressive,” said a flight attendant after I informed her of my needs as I boarded a flight from Munich to Atlanta alone.

This made me curious and led to my polling people when they compliment me to get to the bottom of why something so ordinary becomes extraordinary when done solo by someone with hearing loss or deafness? The answer I most often hear is that a lot of people with hearing loss are timid and reluctant to mention their hearing loss until they are forced to by an awkward moment. We have to remember, those awkward and uncomfortable moments are the same for the hearing people who are on the other end of them, and they prove memorable; which often leaves people with the wrong impression of our entire group.

Chelle: People with hearing loss tend to be meek/timid, we are afraid to bother people. Maybe we’ve heard “never mind”, “I’ll tell you later” or “it wasn’t important” too often over the years. Or, “I SAID….”, then practically yelling at us or over exaggerated speech.. All of this has happened to me and after many years managed to push past all that to make things work better for me. It’s hard but I guarantee it will get easier.

Michele: The other feedback I get is that most people with hearing loss/deafness do not travel, eat out, or participate in certain activities and events alone. Thus, those of us who do, seem impressive. Granted, some wouldn’t do those things alone even if they could hear, but I do think it’s accurate that a large percentage of people with hearing loss tend to take someone along for situations where they can foresee communication challenges or that might prove uncomfortable.

Chelle: I started to enjoy eating out alone when my kids were little. (I had a hearing loss but not as much as I have now.) It was a treat to eat out alone and have someone wait on me for a change. As my hearing loss worsened, I struggled with some waitresses/waiters more than others but I was determined to keep this treat to myself alive so I made it work. I also travel solo and make it work just like I do in restaurants. I’m not sure I’ve been complimented by hearies but I do get compliments from other hard of hearing people for being brave.

Michele: In my opinion, the fact that we are seen as “timid” and opposed to doing things solo demonstrates exactly what’s missing from the process of the diagnosis of hearing loss, the audiological experience (hearing aids and cochlear implants), through what comes after—living and adjusting to life with hearing loss. No one teaches you how to actually get out there and do it, and that’s also true for lipreading.

Find ways to inform comfortably and confidently.

Practice informing. This is an area worthy of much effort, because when you come across as in control and confident it sets the tone for how all of your interaction will go—if you’re not comfortable with your hearing loss yourself, then others won’t be either.

Chelle: Be in charge of your hearing loss, don’t let your hearing loss be in charge of you.

Michele: I’ve pretty much given up feeling like I need to label myself. Labels are confusing (everyone has their own idea about what “hearing impaired”, “hard of hearing”, and other labels mean) and they don’t work very well, so I’ve gotten into the habit of simply putting out there what I need someone to know about me, “I need to see you speak, I’m a lipreader.” There are many variations of informing, depending on the situation, and what works for you, in any given situation, is the right way to do it. Others have their own right way.

Chelle: I played around with labels for a long time. For many years I told people I was hard of hearing. Hearing people think that just means talk louder and that’s what it thought it meant too. After educating myself about high frequency hearing loss I understood why I hear the way I do, then I could explain it to others…but that is a lengthy conversation to have with a waiter or cashier. That’s when I started experimenting with other labels. First I tried, “I’m deaf” thinking they should somehow know that means lipreading but that didn’t work because I’m talking and I don’t use sign language. I had people signing at me and I’m not fluent. So I changed it to “I lipread,” which has had the most success so I stuck to it. Lately I added “I lipread, I hear enough to know someone is talking but I need to see you to hear you.” That feels comfortable to me. They know I can sort of hear which is obvious by the way I look up when I hear a voice but they know I can’t hear well enough to understand without seeing them.

Putting people at ease: Practice until you find what gets the best results.

Michele: Most situations dictate that others will need to know about my hearing loss right off the bat. By taking charge and informing right away I’m heading off any problems, and my hearing loss becomes a non-issue, if I do a good job at getting across what people need to know.

Figuring out what works for you will come by trial and error, so practice daily and start with something small that you do frequently. Think about that situation, where you get tripped up or have problems; then try coming up with a solution. Note what’s effective, and toss out what isn’t.

Below are some of the phrases I use that work well, and people appreciate when I let them know what I need. As I said earlier, confusing exchanges are uncomfortable for both parties. If you work informing into everyday interactions it really does put those on the receiving end at ease.

The first step is usually exchanging pleasantries, which most of us can do just fine if we initiate the exchange. Note: Once you’ve let the person know you have a hearing loss and read lips, they often apologize. My response to “sorry” is usually, “No need to apologize,” said with a big smile.

Grocery store:I’m not going to hear you if you speak to me when I’m not looking at you, I’m a lipreader,” said as I pause from unloading my cart.
Ordering at or checking in at a counter: Inevitably the person will be looking down at their register or computer screen. “When you’re looking down it’s hard for me to read your lips. If you could look at me while you’re speaking, that would really help me out. Thanks.”
Ordering in a restaurant: Just recently I ordered in a restaurant and the server was in training, so I wanted to put him at ease; so I said, “I’m going to tell you upfront, you’re facial hair is going to wreck my lipreading, but I won’t make you shave. You might have to write to me if I get stuck, but we’ll figure it out.” The first sentence got a laugh.
Shopping: Most of the time I go the nearest floor salesperson upon entering the store. I let that person know that I read lips and if they speak to me from across the room or when I’m not looking I’m not going to respond. Because, inevitably, they will speak to me from afar and I won’t see them.
Dressing Room: The salesperson almost always will attempt to talk to you through the closed door, while you are in the dressing room. So, before I enter I tell the person that I read lips and speaking to me through the door is going to be futile.
Boarding an airplane: I always pre-board and the first flight attendant I see as I board gets my little speech. “Hi, how are you this morning? I need you to know that I’m deaf. I travel frequently, so I know the drill and there’s nothing special that I need, other than your getting my attention before you speak to me—you can just tap me on the arm—I’m a pretty good lipreader, but I won’t hear any emergency announcements.” Also, when I’m seated, I let my seat mates know that if they need my attention to just tap me on the arm, because I likely won’t hear them if I’m not looking at them.

I could continue, but you get the picture… simply saying what’s true and asking for what you need, framed as just part of the conversation, alleviates having to label (I do use “deaf” when I feel it’s necessary) yourself and that makes you come across as being very comfortable with your hearing loss.

Chelle: People can’t see hearing loss so we have to be upfront about it or we may appear as stuck-up, slow, oblivious, etc. We are giving people the wrong impression if we try to hide it (by bluffing too). We are all intelligent people with different communication needs and if we all addressed it, the stigma would disappear.

Michele: Sometimes it’s not possible to find someone to inform right away, and if the other person speaks first and I’ve not responded because I didn’t see them, once I’m aware that they were speaking to me, I say “I wasn’t ignoring you, I read lips… if I can’t see you, I can’t hear you.” Likely the person will apologize once they know you can’t hear; I then respond, “That’s okay, you didn’t know, no apology needed.”

The only time I don’t let people off the hook so easily is if they’ve been rude. I let them have their moment of humility and then I let them know that it’s okay, but I do ask them to please be mindful of next person they encounter that doesn’t respond as expected, and try to think further as to why that person might not respond before jumping to a negative conclusion.

Chelle: I have encountered a few rude people and my automatic reaction was to be rude right back, which isn’t the best way, though it worked out. It’s not good to use anger but at times anger made my point faster. I usually regret it, knowing I could have handled it differently.

Example: I was standing in at the grocery stand with a 6 pack of beer on the runway and looked down at my purse to get the wallet out when the cashier began to check me out. In Utah if a person looks under 50 years old they ask to see ID and it’s also typical for cashiers to ask “how are you?” What I heard: “How….you?” I looked up and took a guess, “Did you ask how old I am?” She put her hand on her hip, “That’s what I said!” I came right back at her telling her I’m hard of hearing, I couldn’t hear her while looking down and I wasn’t sure if she asked me how was I or how old am I. She shouldn’t automatically assume everyone could hear. I handed her my ID and she started apologizing. When we got out of the store my son told me he thought I was going to jump over the counter and get in her face. That’s when I knew I handled it badly and could have done better. Since then I have held my tongue and handled those kinds of situations with more tact.

Composure: If you lose yours, you temporarily lose your ability to lipread.

Michele: It’s worth noting, all of the skill in the world is useless if you let yourself lose your composure or are thrown by something unforeseen. In my younger years I did this a lot, mostly because I didn’t take the initiative to inform, or I tried to fake my way through a situation and the bottom would drop out. Living that way kept me on pins and needles, waiting for things to go wrong. I constantly worried before an event; then spent the entire time nervous, worried that someone would speak to me and I wouldn’t understand them. I’m here to tell you that you can reach a point where you don’t have to live like that any longer, but it takes effectively informing and not letting unforeseen happenings push you to the point that they wreck your skills.

Chelle: The more desperate I become to hear or lipread, the harder it gets. Events take thinking ahead and planning for what might be needed. When I put in as much thought, if not more, into hearing as well, as what I’m going to wear it usually turns out better. Sometimes I still bomb but I take it as an opportunity to do it better next time…what can I do to make it more enjoyable next time? Was I upfront about my communication needs? If not, how can I address it next time? As I meet people at large social events I might need to tell people over and over again that I use lipreading and face me which gets tiring but it does help. If someone new points to me and says, “She’s stuck up,” to someone who already knows I have a hearing loss, then they will correct the perception.

Practice, and putting yourself out there frequently is invaluable. The thing I recommend most is experimenting and exposing yourself to the very scenarios that trip you up. And, it is important to “go it alone”, even if it scares you… there’s nothing more empowering than learning to rely solely on yourself. There are some things that can only be learned on your own.

One last thing…

Why others need to be aware that you’re reading their lips.

Lipreaders can be perceived as weird. Back when I wasn’t informing much about my hearing loss (I really thought it wasn’t necessary at that time), many people could tell there was something a little off about me, but couldn’t quite put their finger on it. I’d get odd looks—a wide-eyed, caged animal look—from those hyper-aware that I was intently focused on watching them speak. They’d freak out even more when I would move closer to see their lips better, sometimes even taking a step back to put some distance between us.

BsJwHzvIgAE3RFc
Example: Our new neighbors moved in next door and the husband came over to borrow a tool. I answered the door, invited him in, and introduced myself. I could tell I was freaking the guy out because I was so close and focusing on his lips so intently, but I didn’t mention that I was a lipreader. After meeting both the husband and wife together, and getting to know them a little better, I mentioned to the husband that I noticed how much I freaked him out when we first met, and he laughed. He said he wasn’t sure what to think, but that after he knew that I had a hearing loss it made sense. Had I told him from the get-go that I had a hearing loss and read lips he wouldn’t have spent weeks thinking I was weird.

Chelle: That’s true, people see our focus, we aren’t looking them in eye so much as the mouth. Someone once noticed I was staring at their mouth and thought maybe they had something stuck in their teeth. Since then I sometimes use it as humor to start conversations, “No there’s nothing in your teeth, I use lipreading.” Other times I have the concentration look on my face which can interpreted as a ‘mean’ look, like I might be mad. So when I introduce myself to a group of new people I let them know this is my concentration look (and I show them) and I’m not angry.

Setting the stage for successful lipreading requires you to take charge, inform effectively, retain your composure, and to put people at ease. If this doesn’t come naturally to you, then it’s going to take some practice and effort, but change will come. We promise!

Learning a Foreign Language with Hearing Loss: A chi vuole, non mancano modi

In coping strategies, deaf, Deafness, Hearing Loss, Learning a Foreign Language, Partially Deaf, Travel on June 1, 2017 at 10:33 am

Screen Shot 2017-06-01 at 11.52.34 AM

By Kimberly

     I walked into a pharmacy in La Spezia, Italy with torn khakis and a bloody knee, asking for help in my limited Italian vocabulary. The pharmacist smiled and proceeded to explain in slow, clear Italian the antibacterial wipes and creams that she had on hand, showing me the back of the boxes so that I could read the ingredients for myself. She used a hand gesture to indicate where I could pay, and turned the cash register screen toward me to make sure that I understood how much I owed. She did all of these things for me because she knew that I wasn’t fluent in Italian, but ironically, they are the very things that would help me in English as well because I have significant hearing loss.

20170307_184734

La Spezia, just before I fell!

     When I decided to teach a two-month study abroad course in Italy, I was expecting to feel the effects of my hearing loss more keenly. Any time that I’d spent in a foreign language class or watching a foreign movie had taught me that guessing what I’ve just heard (something that I have to do every day) is so much harder when I’m not hearing English. Most of the time, my brain automatically fills in words, and much like the autocompletion function on my cell phone, it’s usually a big help but sometimes hilariously wrong. In a less familiar language, I have virtually no autocomplete helping me, and I’m forced to guess far more words—some of which I may know and some of which I may not. I expected to feel especially lost in Italy, but I decided to grin and bear it for the sake of a new and exciting experience (and the food)! What I didn’t count on was that living and working with people who speak Italian isn’t the same thing as trying to watch an Italian movie without captions. People in conversations, especially kind people (which many Italians are), will try to work with you so that you understand. And unlike my hearing loss, which people frequently forget about, my status as a foreigner in need of help was something that people in Italy almost never forgot. Unexpectedly, being an outsider helped me cope with being hard of hearing.

20170307_144034_HDR

The hiker’s view of Corniglia in Cinque Terre

     I had likewise overestimated the degree to which my hearing loss would make my time taking Italian classes more challenging. I had decided to take the accelerated Italian class with some of my students but harbored some doubts in the beginning about my abilities to keep up. However, being honest with my instructor about my hearing loss from the beginning helped us determine some easy strategies to help me follow along. Whenever a new word was introduced, or even whenever I was having trouble with a sentence, she would write it on the board. As an instructor myself, I knew that all of the students were actually benefitting from this extra step put into place for me. I often find that that’s the case with accommodations for students. Because they reinforce an audio or visual component of the lesson, they typically aid learning for everyone else. I still ran into frustrating moments in class. When my instructor asked me questions and I misheard what she had said, I felt the same sort of panicked feeling that I used to get when I was younger and not yet as accustomed to my hearing loss. I didn’t know where to begin—how to explain what I hadn’t understood, and I found myself frustrated that everything had to be just a little harder for me than it was for everyone else. For some reason, being put on the spot and not hearing in a foreign language brought all of that back to me in a way that I can’t really explain. Still, I’d remember myself and remember that I’ve had so many of those moments in life, so I know how to deal with them. A couple of times, I’d see a student of mine struggling to keep up in an Italian class or conversation, nearly in tears, and I could say, “I know how you feel. It’s frustrating. Give yourself permission not to understand everything! Know when to try and when to take a break.”

20170303_152746

The view of Florence from Boboli Gardens.

     I’m not going to pretend like it was always easy. I ran into some real challenges. I had practiced explaining my hearing loss to people before I left. “Sono dura d’orecchi” means, “I’m hard of hearing,” but the first time that I tried to say it, the person who I was talking to snickered and told me, “Don’t say that. Say ‘Ho problemi di udito,’ which means, ‘I have problems hearing.’” When I prodded as to why, I found out that “dura d’orecchi” was the clinical term for being hard of hearing but was also slang for “stupid.” That’s pretty much the most obvious example of audism in action that I can think of. “Audism,” for anyone who doesn’t know, is the belief that people who hear are better or smarter than people who don’t hear or have some hearing loss. It doesn’t take much of a leap to figure out how the word for “hard of hearing” came to mean “stupid,” just like Americans will sometimes use “retarded” that way. Trying to figure out what I was going to call myself made me confront all of those foolish assumptions about hearing loss that used to make me ashamed, especially when I was a kid. I was actually afraid to let most people in Italy know that I had hearing loss, just because you never know how someone is going to react, and I wasn’t sure what their cultural attitudes were toward it. The more comfortable I got, though, the more I realized that people would understand. As long as you approach people with specific requests, like, “I don’t hear well. Can I stand near you while you give the tour?” they will help and be nice about it. Just like in the States, learning concise ways to explain what you need goes a long way.

     Learning how to ask for what I wanted was always a challenge. I’d ask an Italian coworker, “What’s the word for ______ in Italian?” and the answer would, of course, be incomprehensible to me! I learned to carry paper with me and ask, “Can you write that down?” Likewise, when I’d ask a waiter to repeat something, or when my husband would repeat it for me, the waiter would almost always switch to English, which was frustrating, since I wanted to learn the language. Simply explaining that I was hard of hearing first usually really helped, and when it didn’t, I just went with the flow. You can’t win every battle.

20170310_200701

The downtown nightlife in Genova.

     I had learned to let myself lose now and then when brushing up my language on Duolingo—a free language app that “gamifies” the study of foreign language. Rather than turn off the listening option, which would give me no practice listening, I simply tried listening and failed repeatedly! Yes, my scores suffered, and yes, it took me far longer than my husband to work my way through the lessons, but I was trying. I have to give myself permission to be pretty bad at languages! Even if other people never understand why it’s harder for me, I understand, and I cut myself a break. When I was taking the formal Italian class, I asked for transcripts of oral exercises. One of my classmates, of course, griped that I “had it easier” on exams because of this accommodation—completely oblivious to the extra challenges that make this one “advantage” so necessary. Again, I could brush it off. When you’re hard of hearing, you have to either give yourself permission to fall behind or give yourself permission to ask for help, knowing that there will be frustrating consequences either way and that it’s important to pick your battles.

     I think that humility is a skill that anyone has to hone while learning a new language. Because of my hearing loss, I’m used to not knowing what’s being said. A lot of people aren’t! So maybe my abilities to learn a new language aren’t going to be as sharp as a hearing person’s, but my attitude can still give me the edge. I’m a different learner, not a worse one. Learning a new language, especially through an emersion experience, is disorienting and tiring. For those of us who have the extra challenge of hearing loss, it can sometimes feel impossible. Yet, we have our own superpowers—our ways of dealing with confusion and exhaustion that we have honed over the years. Living in Italy reminded me that I’m far from helpless, and that there are always a few people out there willing to make the extra effort to communicate when it really counts.

Screen Shot 2017-06-01 at 9.18.13 AM